AngelTwins

When Jason and I found out that we were having twins we had our concerns. We only had one scare throughout the entire process and that was a blood test that came back false/positive for Downs Syndrome. We were sent to a specialist for more tests. We were relieved to find out that neither Henry or Emma had Downs. Let me stop and clarify here that if the results had been different, Henry and Emma would have still been carried to term and brought into this world and loved every bit as much as they are. We were lucky, very lucky. And we are both very grateful for our healthy children. But there are so many other parents, not just parents of twins, that aren't.

I was recently told about a set of twin girls who were born with a fatal disease called NPC (Niemann-Pick Disease Type C).

NPC is a disorder affecting lipid metabolism (the breakdown and use of fats and cholesterol in the body), in a way which causes harmful amounts of lipids to accumulate in the spleen, liver, lungs, bone marrow, and brain. These substances are building up in our bodies every day. As the substances build up in our brains, they cause neurological problems that worsen with time. The disease has been likened to a "Childhood Alzheimer's" - robbing children of their minds and their lives. -exert from cathrynandcorynne.org-angeltwins.

Their story and what their family's mission is is incredible. These two precious little girls and so many other children are no longer here because of this disease. Unfortunately, like so many other diseases, there is not a cure. What I'm asking is that you take a few minutes to go to their site and read about their journey and what the Bouchard's (Cathryn and Corynne's family) are doing to help find a cure.

Please help with whatever you can-volunteer, donate, spread the word.

March 28th-Angel Twins 5k/1 Mile Walk Run in Frisco, TX.
runfortheangeltwins.org

or

Million Dollar Mission

Please visit Cathryn and Corynne's site
angeltwins.org